The Difference-Part 3

Part 1
Part 2

At that moment, I realized I had a conscious decision to make. I could get defensive, cry, storm out and say they weren't legally allowed to ask me about my hearing loss (were they? I'm still not even sure?), or I could put my advocacy skills to good use and actually educate them. So I put on a composed front and reassured them that everything would be fine, carefully answering each of their questions. I should note that they were really friendly and seemed to actually care and were genuinely concerned, but it was still a little overwhelming.They barraged  me with questions that included (but were not limited to):

• How will you hear in (various listening situations described)? 
• There's 2 teachers... one microphone. How will that work?
• What if you and the other girl with the microphone are in the same class? Will it still work?
• Will you tell us if you can't hear?

Apparently they had a really bad experience the one time they had accepted a deaf/hard-of-hearing student. My understanding is that she was oral but relied on lip/speech-reading quite a bit to comprehend what was being said. All year, the girl would stand in the back whenever they were teaching how to do skills for the CNA exam taken during the year as part of the class. The girl was going through a bad time in her life or something and refused to look at the teachers to lipread them. And of course, all year the girl never came to the teachers to let them know she was struggling, so they never really had any inclination. Their main concern was that I might be struggling to hear, and they just wanted to be sure I would tell them if at any point there was an issue so they could help me.

I could see where they were coming from, and it's certainly easy to think one individual is representative of an entire group, especially since she's the only one in the group of students with deafness they had met! It's a shame that it was a bad experience, but they were open enough to see that I wouldn't be like that. Although I felt I had handled the situation well and responded confidently, I was still extremely worried that I wouldn't be accepted because they would view the FM and hearing loss as an extra burden. As I have posted previously, I was ultimately accepted. The other girl with cochlear implants was accepted as well. At an informational meeting with all of the students, the teachers came up to me to be sure I heard everything okay. They really seem comfortable with the whole idea and I can tell that they care and want me to succeed. I brought up the whole stethoscope issue and mentioned that it was not yet resolved, but we were working to find a solution. They assured me that even if I can't get it to work, they will figure something out and work around it if we have to. Of course I would like to ultimately be able to use the stethoscope, especially if I end up following my current dream of becoming a doctor, but I am really glad to hear they're willing to work with me if it's not possible.

I am really excited for the class. I really do think it will be a great experience. Anyway, the main reason I shared this was to demonstrate how positively they reacted. They openly voiced their concerns and listened when I gave my input, and I do feel that they will work with, rather than against me to solve any problems that might spark up along the way. In the next few posts I will share another experience, but it's not a positive one. Actually, I'm still kind of in the "what should I do?" state. I have received quite a bit of advice and I am trying to figure out my next step.

Anyway.. stay tuned for part 4!

The Difference- Part 2

This is part 2 in a series. If you haven't already done so, I recommend reading part 1before continuing.

I slowly got up and walked towards the interview room from my desk. An outspoken girl in my class shouted "good luck!" as I got up, but I assured her I had already interviewed and had no idea why I had to go back. I knew it wasn't to say I got in since they told us the list would not be posted for another month.

I hesitantly opened the door and peeked my head in the room. "Come in! Sit down!" they said. Well, they were being friendly... That seemed like a good sign...

Then, one of the teachers explained how during the course of the interviews that morning a girl in another class (who also has CI's) had brought in her FM and stated that the teachers needed to use it. This sparked the teacher's memory (who had visited our classroom before), and she made a comment along the lines of "Hey, last time I had to wear one of these things twice. I wonder if the other girl that used one also applied."

At this point, the girl being interviewed decided to be helpful, and said "Oh, yeah!" and then stated my full name.

This was one of those moments in which I mentally screamed "Really?! Was that really necessary?!"

I can't really blame anyone else, it really wasn't the girl's fault that she shared her knowledge... But I was still slightly annoyed. Anyway, there wasn't much time for me to get annoyed because one of the teachers continued.

"We were shocked... We had no idea, and you speak so well!"

Okay, this wasn't the first time I'd heard this...So far, so good...

"I can understand not wanting to be identified as the girl with hearing loss first," she continued, and told me about how she doesn't introduce her own daughter who has a chronic condition to people as "Jane, the girl with (disease)."

"But," she continued, "we have some concerns."

 "Here it comes," I thought to myself, and I took a deep breath.


Look for part 3 tomorrow!

The Difference

Occasionally, people with little experience with hearing loss will make a hearing-related comment or ask a question that sounds absolutely ridiculous and stupid to someone who has dealt with hearing loss his or her entire life. It's easy to jump on these people, and write them off as ignorant of hearing loss and possibly even people with disabilities as a whole. What I've learned is that rather, it's how these people react after you try to educate them that demonstrates that they're either willing to learn and open-minded, or indeed ignorant. I've been putting off sharing these stories on my blog for a little while now, but they truly demonstrate the polar opposite reactions I've faced when trying to educate people about hearing loss. I'll split this up into a few posts- one story has a happy ending, the other with an unresolved and leaves-a-bad-taste-in-your-mouth feeling.

A while back I shared that I had gotten into a program at my school that's medically oriented with lots of hands on and observational experiences in medicine. It was a big deal to me because the program requires applying, getting recommendation letters, and an interview with the teachers of the class.

The interview required getting dressed up in formal business attire. Before the interview, I weighed the pros and cons of disclosing my hearing loss. While it seemed like it would be easier to be honest and upfront, I also didn't want deafness to be the topic of the entire interview, which would be short anyway. In addition, when people hear the word "deaf", it's easy for them to jump to conclusions based on their minimal experiences with other deaf people. Rather than focusing on my qualifications, I was afraid that their minds would instead start racing about the possibilities of things I *couldn't* do.

It was for those reasons I decided it would be best to wait until *after* I was accepted into the program to tell them about my CI's and hearing loss. My only concern was that one of the (two) teachers had visited with some students taking the class to tell us more about it a few months prior to the interview. She had been given the FM to wear, so I wasn't sure if she would remember that I was the one that gave it to her. I figured I'd take my chances, and if she said mentioned anything about it I would simply say that I used my FM to deal with noisier situations, but that I hear pretty well most of the time. It was true, and it seemed to be a good way to avoid talking about hearing too much.

So the interview came, and I got all dressed up and was so nervous. My sister (who took the class) told me not to shake their hands since one of them is a slight germaphobe, but someone else said it would be rude not to. Should I extend my hand, or just see if they extend theirs? What if I misheard their questions? What if I said something stupid?!  In the end, they only asked me one question, and then spent a couple of minutes talking about my sister. At the end of the interview, the teachers told me "Your grades are great, you have outstanding recommendations and a flawless attendance record. I think we know everything we need to know!" and asked if I had any questions. I took that as a good sign (since those were the assets they listed as the most important to get into the program).

So I was relieved that I was done interviewing on the first day, since the teachers were there over a course of two days and some people wouldn't get interviewed until day 2. That night I had tons of homework and tests to study for. I barely got 4 hours of sleep, and I don't even think I had time to shower (that's not a regular occurrence, just fyi, haha!). That morning I was running late, so I pulled my frizzy hair into a messy bun, threw on an oversized T-shirt and jeans, and ran out the door without a touch of makeup on. I usually wear very little  make up regularly, so it wasn't a really a huge deal except for the sunken in dark circles around my eyes. It was just one of those days where I looked (and felt) like hell!

With this mental image in your head, you can no doubt imagine the shock that came over my body when I arrived to medical science and the teachers came out and called my name and stated they "needed to talk to me." My heart and mind began racing. What could they possibly want?

To be continued...

Deaf teacher publicizes discrimination, gets suspended

So it just seems that there has been a lot of hearing loss/discrimination related new in my area lately. This article caught my eye when I was reading the newspaper this morning (Yes, I read the paper and always have. My friends like to make fun of me for doing so, but I'm always well informed!)

My summary: Kathleen Nosek is a deaf special ed teacher and has been teaching at the same school for ten years. In the past couple of years the principal of the school, Amy Miller, began insisting that Nosek administer pronunciation tests to her students herself. In the past Nosek had other teachers perform this test (which only had to be done a few times a year) for her, and it wasn't a problem. When Nosek told Miller that her hearing loss made it extremely difficult to accurately perform the tests, Miller questioned whether Nosek's hearing loss made her unfit for her job (which she's been doing for years just fine!). Well, Nosek chose to bring allegations of harassment and intimidation by Miller before the school board. The morning of, she had a local news reporter in her classroom and was interviewed. This led to her suspension.


The full story along with hundreds of comments is available here. If you ask me, this story is blatant discrimination, and her suspension is just the tip of the iceberg.

The news reporter published a blog post with a few clarifications and updates, available here.