The last three months, in bullets

• A few months back I went into a class filled with audiology/SLP grad students to tell my story and answer questions. It was a great experience, and it was nice to see how eager they all were to become the best professionals possible. To be honest, grad school looked much more interesting than high school, but it probably isn't always that way!
• I got an iPhone 4! I am in love with it! It took a few hours to get used to the the keyboard (and I still have trouble typing without looking, but who really needs to be able to do that anyway!) I was worried I wouldn't be able to hear very well on it, but the sound quality is actually much better than any other phones I've used in the past. I don't use the listening/speaking part of the phone too often, but it's good to feel confident that I can hear on it when I do use it. I haven't gotten the chance to try out the FaceTime feature yet... It is wonderful having my music and phone all in one, and the apps aren't too bad either :)
• I have officially had my license for 6 months! My mom insists that's not very long, but it does mean that I can now legally drive more than one passenger in my car!
• Yesterday marked two years since my bilateral surgery. I'm finally getting to the point where I'm not feeling like I constantly need to go for mappings, and it is *so* nice.
• I still have a love/hate relationship with school. Hate the work, but I'm loving spring break :)
• For the last month or so, I've had horrible jaw pain upon opening my mouth, chewing. talking, yawning.. you get the idea. Today I went to an oral surgeon and he asked if I've been under stress lately. I laughed- when am I not under stress? Apparently I clench my jaw at night because I'm stressed, so the joint on one side of my jaw is out of place. It's supposedly really common, and is curable by doing some mouth exercises a few times a day. 
• The above appointment was also to have a consultation to get my wisdom teeth out. Yeah, that's what I get to do this summer on top of two different (P)SAT programs, online school, and volunteering. What happened to summer being time for relaxing? Or even having a little bit of fun? 
• The aforementioned surgeon also mentioned a company that takes wisdom teeth and preserves the stem cells in them for future use. There's no telling what medical advances will come about in my lifetime with stem cells (and I'm not just talking about hearing loss), so we'll look into doing that.
• I definitely had another two or three bullets to write, but then a bug flew onto the keyboard and I got completely distracted and don't remember what I wanted to say...
• I feel like I change the colors of this blog more often than I post, but it looks wintery and I'm read for spring. Plus, I looked back at some of my older posts and noticed you can't read them with the darker background..
• I just remembered everything I wanted to write...
• I wanted to thank everyone for the outpouring of support as well as the wealth of information that you have all provided regarding my last few posts. Pedro Martinez left a comment about an online course about stethoscopes with hearing loss. It was extremely helpful, but of course the speaker lost connection right as she was about to talk about stethoscopes with cochlear implants. So typical! I've decided to hold off messing with stethoscopes further, since we're done using them for the year. I may or not need it next year, depending on if I get into a program I'm applying for. More to come in the next month, keep your fingers crossed for me!
• I'll be participating in a research study on FM use and cochlear implants, and I will get the chance to try out a couple of different FM systems. I will keep everyone posted!
• I'm embarrassed to admit that I even watch Celebrity Apprentice... but did anyone else see the most recent episode on Sunday night? If not, let me just say that it is the epitome of of ignorance of hearing loss/deafness (or whatever term you prefer).
• Most importantly- I ask that as you pray for the thousands of tragedies in Japan and whatever else is going on in your life, please squeeze Sara and her family into your thoughts and prayers, if you haven't already. Sara is an amazing young woman and a member of the Cochlear Community. Her brother and sister were recently in a car accident. Her brother was killed, and her sister is currently in a coma. I can't even begin to imagine being in her situation, but I do know that every last ounce of support can make a difference.

The telephone, hearing and exams

*Sorry if you've left me a comment/email/message and I have not responded. I fully intend to, and I know some of these are months old (and some are only a few days old) but I want to respond all at once when I have the time to give full attention to the topic at hand. I appreciate your patience :)*

The reason for the need for the above statement is because I have been studying like crazy for exams. I'm only posting this because I know if I don't do it now, I never will get around to it!

• I'm having one of those hearing "highs". I really hope I'm not completely jinxing myself by saying this, but I 've just been hearing extremely well lately. It's so nice.. This has led to a few "CI moments" and the realization that it's been two and a half years since my first implant was turned on. Where has the time gone?
• On that subject: I've been having some difficulty in one of my classes. It's my gifted and talented class. It's very fast-paced, requires a ton of reading and class discussion, and it's flat out hard. I'd been having an internal battle for weeks and weeks over whether or not to stay in it, since my grades just weren't where I wanted them to be in that class. I made tons of lists and talked to lots of people and I thought I had my mind made up that I was going to change to an easier class next semester. I decided to talk to my teacher (again) as a last resort, and he gave all sorts of tips* on how to study, which included studying with friends. This is something I pretty much never do, but I figured it couldn't hurt. I decided to stay in the class for the time being (it is also one of my favorite classes, just extremely challenging.) So, in preparation for upcoming exams (which started today), I got together and studied with friends practically all day Sunday.
• In the morning,  I got together with just my best friend and we decided to make a study guide of everything we could possibly need to know for the first section of the test. The class is sort of a mixture of 3 different subjects (it's taken over 2 years, so you get 2 different credits), so we made a study guide for the first part. We started off with my friend typing. I soon learned she has some pitiful typing skills ;) and we decided to trade off. I listened to my friend, read the text book, and type simultaneously. In the middle of doing this, I realized I never could have done this a couple of years ago. It didn't even occur to me that I would have trouble hearing what she was saying without staring at her lips, and it was never even an issue. Being bilateral, it was also nice not having to worry which side to sit on or constantly having to turn my neck/head.
• Later on, we decided to meet up with a bigger group of friends and spend three hours discussing everything we knew. We were at a friend's house that was relatively quiet, and I was able to follow most of the conversation. Keep in mind these are my loud, crazy, friends who find it perfectly acceptable for five people to talk at once, which is exactly what happened. While I did occasionally have trouble keeping up, I'd say I understood a good majority of the conversation and was able to stay involved given that there were no other outside noises. Eventually, my friends had trouble understanding what was being said so we had to enforce a rule that onlt one person could talk at a time. That lasted about five minutes!
• Today, my phone was dying so I went and plugged it in. I left the room to go work on one of my exam reviews, when I heard that all too familiar buzzing of my phone. My friend was calling me. Instead of running away (or not hearing it ring in the first place..) I ran to answer it. I was on the phone with my friend for two hours, and we were discussing the information for  (different exam than the one previously stated) our exam tomorrow. I was in the study/office talking on the phone, when my sister and her friend came in and were having issues using our copy machine. They were laughing hysterically, and the machine was beeping like there was no tomorrow. All the while, I maintained and understood the conversation with my friend- how cool is that?! I was not using T-coil, mainly because I didn't want to have to mess with it while on the phone. Halfway through the conversation, I briefly put down my phone to flip throught the textbook, only to realize that the battery was once again dying. I ran to grab the charger (and cursed my luck), and plugged it in. My cell phone charger has an annoyingly short cord, so I had to put it on speaker phone in order to prevent me from having to lean towards the ground for the phone to reach my ear. I made an interesting discovery- I do not hear nearly as well on speakerphone. I don't know if it becomes distorted because it's too loud, or what, but the difference was pretty dramatic.

The pain has returned and is in full force. I would be lying if I said I wasn't worried- I am. My doctor is not concerned at all, but part of me is afraid that the implant could be infected or something, and they won't realize it until it's too late. I'm hoping that part of me is just paranoid! We are going to see if we can get insurance coverage for the N5 on my new side ASAP in order to see if that will help with the pain. I really hope so, it's getting pretty uncomfortable. Thankfully, the dizziness has disappeared. And, there's THREE days until my winter break starts. Do I hear cheers and applause?!

*For now, I think I'll stay in the class. This change in my mind has also been helped by an increase in my grades, which never hurts!


Happy Holidays to all!

My New Cellphone (and why you shouldn't rely on pockets to hold your keys)

About a week ago I got a new phone. Prior to that, I had a really awesome Sidekick 2008. I was in LOVE with this phone. I'm a big texter, so it was perfect for me with its QWERTY keyboard, and it was my first "smartphone" which was pretty cool, and it had all these random nifty features. Some I didn't use, but the internet was pretty cool! Plus, it had removable covers and this website where you could make your own personalized cover for the same price! I made this really cute pink one with my name and some music notes, and an adorable picture of my dog.


Okay, after all this gushing I'm even starting to ask myself why I got a new phone! But, truth be told, hearing on that phone was a disaster. It was absolutely not T-coil (or hearing aid) compatible, and even without T-coil I got some interference. Sometimes I need/want to use the phone, so just being able to text was not optimal.


My phone contract was coming to an end and my Sidekick kept malfunctioning and not letting ,e text. Not good! So, I decided it was time to research ( a lot!) for a new phone. One thing I discovered is that every single major phone company I looked up has a list of all their hearing aid compatible phones. This was really helpful, and most of them also listed the ratings (M3, or M4 and/or T3 and T4)

Here are the links, if anyone is interested.

T-Mobile (scroll down towards the bottom)
Verizon
at&t
Sprint (For more info on their TTY compatible phones and Relay services, and data-only plans click here)

I looked at all of these websites and the features of each phone. I went to T-Mobile (my provider with my Sidekick), Verizon, and at&t and tried out all of their hearing aid compatible phones. Some interesting things I found out were that T-mobile has no M4 or T4 phone, only M3/T3, which is a lower rating. When we went by the at&t store, they claimed to have only one hearing aid compatible phone, which was a really basic phone. So, we scratched at&t off of the list. I tried the phones at T-Mobile, both with and without T-coil, and found that they were still somewhat hard to hear on. Plus all the cool phones (G1 and MyTouch, anyone?) were not hearing aid compatible. I realllly wanted one with a full keyboard, and that I could hear on, it didn't even have to be a "nice" phone. So off to Verizon we went.



I was surprised that they had quite a few phone that had T4 as well as M4 ratings. They had all kinds of cool phones- Blackberries, touch screens, full keyboards, - ALL with M4 T4 ratings! Sweet! I tried out quite a few, and finally settled on, drumroll....

The LG EnV Touch! It has a full QWERTY keyboard, as well as a touch screen (with keyboard) on the outside when you shut it. It has a rating of M4/T4 and I could hear well on it when I tried it out in the store. The guy even gave me these two pink covers that I can put on it! Yeahh!

It works well, and I really like it. It has most of the features that my Sidekick had. The one thing I don't like is that Verizon apparently had a 160 character text limit to non-Verizon users...who knew?! I was kind of annoyed, especially since they didn't tell us. My friends thought it was pretty funny "No more of your infamous 5 page long texts!" Oh well! I can still send and then finish the message in a new text message, so I can live with that.

It seems I need a new mapping, though. I tried out the phone a few weeks before I bought it, and I could hear great! But my friend called me the day after I got it, and I could barely hear her. I'm not going to go into all the details (because I can't without making myself sound like a complete idiot) but I'm just going to say that I didn't hear the time we were going to the movies, and had to beg one of my other friends to find out. She refused, but it all worked out in the end.

I have since tried using the phone on my left (new) ear with much more success! I was delighted with that! And the thing is, you never know when you'll need to call someone. I'm saying this 10 minutes after getting into my house after being locked out for 25 minutes. That definitely required me to make a few phone calls! My poor dog has a hurt paw, but he was feeling kind of anxious so I decided to take him on a short walk. My dad was out of town, and my mom decided to take my sister shopping, so I was home alone. So, being the very responsible teenager that I am, I took a key and locked our front door after leaving. We just went down the block, but I could tell Zach (my dog) was getting tired and it was hard for him to hop on three legs. So we walked back to the house. Right as I was about to get the key out, a thought popped in my head, "Wouldn't it suck if I lost my key?" I then reached into my pocket where I had oh-so-safely put the key, and it was nowhere to be found. Panic set in and I turned each of my pockets inside out in desperation. Nothing but a tube of chapstick and my cellphone!

I called my mom, who was pretty angry that I left the house in the first place. After doing her usual, "I'm going to kill you!" she instructed me to retrace my path to see if I could find the key. By then, Zach was completely exhausted, and whenever I tried to get him along with me to come look, he would just go in the street and drink the drain water. So, I tied his leash loosely to a tree branch and went on my way to look for the stupid key. I looked carefully, using my phone as a light since it was now getting dark out. I could not find it! My mom called me again three times, saying she was on the way. The only thing is, she was a good half hour away. Finally, by some miracle, one of our neighbors answered her phone and drove over and brought me a key-- after I'd been sweating out side for 45 minutes! The walk (20 minutes) was shorter than the time I waited!

Don't you hate it when you try to be independent and make a complete fool of yourself?

**UPDATE** I made an even bigger fool of myself... Apparently my jean shorts have a little tiny pocket inside of the normal pocket- perfect for fitting a key! My mom decided to search my shorts and thought it was HILARIOUS when she found it! Me-not so much. At least I didn't lose the key?!

Facing My Fears...

This summer I decided to volunteer at a nearby hospital. They have a teen program that requires a lengthy process of applications, recommendations, an essay, and medical tests. I considered letting them know about my hearing loss, but soon decided not to. My only worry was that I would have to answer phones.

Growing up with hearing aids, I avoided talking on the phone unless absolutely necessary. Whenever I was alerted there was a phone call for me, I would be overcome with a flood of nervousness. For me, talking on the phone usually entailed having it on speakerphone while either my mom or sister would stay close by to clarify anything I misunderstood. Since I misunderstood quite a bit, oftentimes my sister or mom would end up taking over the conversation, and then would go into some long conversation with my friend that was totally unrelated to what they even called to talk to me about. With my implants, I am able to use the phone normally and fairly well, but I usually only talk to close friends and family who:
a) Are fairly patient
b) just call to tell me a story, and spend an hour on the phone without me actually having to give any input
or
c) Tend to keep the conversation brief.

I figured that since we got to tell our top picks of places to volunteer, I would just avoid any that required phone work. Since I'm under sixteen, most of what I do is office work since I can't be a certified sitter or do any interacting with sick patients. When I got my schedule, I was surprised that I only got one of the the three things I requested. I hurriedly looked over them, and relief doesn't even begin to describe how I felt when I realized none of them listed answering phones in the description!

So, my first day was yesterday. At first we were divided into a bunch of groups and had to find a bunch of places in the (MASSIVE) hospital. It took about an hour and a half, and then we were sent off on our own to find our jobs. I arrived at my job and found some people that worked in the department. "Hi, I'm your student volunteer!" I said.
"Well what are you supposed to do?" the lady replied back.
Heh. Wasn't she supposed to tell me that?

After lots of back and forth between the volunteer office and the place where I was supposed to volunteer, I ended up just sitting there for two hours. The person who was supposed to be my supervisor was apparently too busy to show up, and the person in charge of coordinating the volunteers was convinced that she would, but alas! There wasn't really much I could do, and they let me go to lunch early. I got to sit with another girl who also got off early, and she was really nice. And, she showed me where my next assignment was, which took a good fifteen minutes to get to!

So I got there and my supervisor, a nurse, was actually there! She was really friendly, although she seemed to have a lot on her mind. For the first hour she had me doing a lot of things with filing and patient charts. Then I heard her calling my name from her cubicle. I rushed to her service.

"I'm so glad I have you! I have so many things I need to get done! Now I just need you to call a couple of patients...."

I'd tell you what she said next, but I started zoning out and going into a mini-panic as soon I heard the word "call". I could feel my face getting hot and my heart starting to beat faster. She then wrote out a script of what I needed to say and the numbers I needed to call. I slowly walked back into the room I was in, script in my hand.

I sat down in my chair and took a deep breath, I looked at the desk, completely bare except for the phone sitting in the center. I scooted in, sat up straight, and called the number, ready to complete my daunting task.
"I'm sorry the number you have called..." a voice said. I hung up. "This is a sign I shouldn't be calling!" I told myself.

Then I suddenly had a vague recollection of having to dial a 9 before a number outside the hospital. I tried again.

I began tapping my fingers on the desk.

I silently wished to myself,"please don't pick up, please don't pick up, please don--"
"Hello?" a woman's voice answered.
NOOOO!
Things sure weren't going my way!

"Hi, I'm calling from the hospital to say that you need to let your pharmacy know to fax the prescription to 2345678901, attention to Thenurse," I said, reading off of the script.

"okay, and how do-----?"

I gulped. "I'm sorry, could you repeat that?" I asked.

"How do you------? Is it T-h-a-n-o?"

"Oh! No, it's spelled t-h-e-n-u-r-s-e."

"Okay, thank you!"

Phew. I did it! The rest of the phone calls went better. I had another brief moment of panic when I was asked to call and find out a fax number. I was successful, and was just glad it wasn't an email that I had to write down, letter-by-letter :)


My eight hours soon finished up, and I can't say it wasn't an exciting first day! I'm hoping tomorrow is somewhat less stressful. Maybe I should start using the phone a bit more...